| RXinsider__Cough Basic information for patients. |
| TrachyVentList Group for people living with a tracheostomy and or ventilator, their families, friends and carers. Information on how to join plus profiles of members. |
| Vocal_Cord_Dysfunction General information on this condition. |
| Center_for_Research_on_Chronic_Illness Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people. |
| Chronic_Conditions Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic. |
| Chronic_Disease__Forming_Healthy_Relationships Advice for doctors and health workers on treatment and support of chronic ill patients. [PDF] |
| Chronic_Disease_Management British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model. |
| Chronic_Disease_Management Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details. |
| Chronic_Disease_Prevention Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state. |
| Chronic_Disease__Prevention_and_Management Calgary Health Region to host its second international conference from October 29 to November 1, 2007. Registration opens October 2006. |
| Chronic_Disease_Surveillance_in_Canada Background paper also proposes multi-partnered data base renewal (2003). [PDF] |
| Chronic_Health_Conditions_not_a_Barrier_to_Successful_Aging Advice on 'successful aging' with good management of several chronic conditions by HealthLink, the Medical College of Wisconsin. |
| Chronic_Ill_Net Patients, doctors and researchers discuss diseases: Gulf War Syndrome, Chronic Fatigue Syndrome, AIDS, biological and chemical weapons. Many articles. |
| Chronic_Ill_Net Multimedia information source dedicated to chronic illnesses including AIDS, cancer, Persian Gulf War Syndrome, autoimmune diseases and neurological diseases. |
| Chronic_Illness__Acceptance_Is_the_First_Step_Toward_Healing Short description of the day to day acceptance process. |
| Chronic_Illness_Coping Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques. |
| Chronic_Illness_Tips A personal account of strategies for daily living. |
| Coping_with_a_Chronic_Illness_in_your_Family Advice to family members, including communication, financial matters, independence and taking charge. |
| Coping_with_Chronic_Illness Patient information publication of the Warren Grant Magnuson Clinical Center at the National Institutes of Health (USA). |
| Coping_with_Chronic_Illness An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients. |
| Coping_with_Chronic_Illness The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease. |
| Coping_with_Chronic_Illness_and_Depression How to recognize depression and when to consult the doctor. [PDF] |
| Coping_with_Long-term_Physical_Illness_and_Pain Short explanation to counselors on defense mechanisms and coping styles of patients. |
| A_Day_in_a_Life_with_Chronic_Illness A personal account of daily events aims to promote better understanding. |
| Diet,_Nutrition_and_the_Prevention_of_Chronic_Diseases Combined World Health Organization and Food and Agriculture Organization expert report on prevention of obesity, diabetes, cardiovascular diseases, cancer, dental diseases and osteoporosis. [PDF] |
| Expert_Patients_Programme_for_Long-term_Patients Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views. |
| Faced_with_a_Life_Threatening_Illness_ Questions, concerns and links provided by Australian Palliative Care Council. |
| Family_Caregiver_Alliance National Center on Caregiving offers fact sheets, advice, research reports, public policy briefs, and newsletters. |
| Guidance_for_People_Facing_Serious_Illness Handbook gives short, practical advice how to handle serious illness and dying. |
| Health_Action_Network A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources. |
| Household_Management_Questions_for_Others_with_Chronic_Illness Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker. |
| Illness,__Disability_and_Social_Inclusion Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF] |
| Improving_Chronic_Illness_Care Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical informati |
| It\'s_Your_Life E-book on chronic disease management available for free online reading or download. |
| Learning_to_Cope_with_Chronic_Illness Practical advice to patients and significant others. |
| Learning_to_Live_with_a_Chronic_Condition Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series. |
| Living_with_Chronic_Illness Personal advice on making adjustments and maintaining hope. |
| Living_with_Chronic_Illness_and_Disease Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories. |
| Living_with_Chronic_Illness_and_Pain Explains how lifestyle changes can be effective in self-managing a condition. From Men's Health Peer Education. |
| Living_with_Long_Term_Illness Tips and ideas on dealing with a chronic condition in daily life. Personal site. |
document.write(getDateStr()) 
CONDITIONS 
Pulmonary Fibrosis 
Welcome to our little website... where you'll learn about two interstitial lung diseases, IPF (Idiopathic Pulmonary Fibrosis) and Sarcoidosis, from patients sharing their experiences. Our Compilation of Pulmonary Definitions provides quick reference to FAQs from online support groups. Its abbreviations & acronyms section is a "'list with a twist" — with links to the glossary for further information). Making good on a promise ... a new chatroom has replaced the former one. New features include chat icons and 'browse the web' capability. About the new logo... What better example of no AIR than honeycombed lungs of end stage pulmonary fibrosis, stiff and wood-like in texture, leaving no space to breathe – a picture the fund-seeking PF orgs should present for disease awareness purposes. Either that or a monstrous winged and scaly serpent, because PuF's a deadly dragon! 
We subscribe to the HONcode principles of the Health On the Net Foundation 
