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Rare Disorders

Now2007.com on 2006 : Conditions and Diseases : Rare Disorders
  • Mastocytosis @ (386) 08-09-07
  • Arthrogryposis @ (68) 08-09-07
  • Celiac @ (57) 08-09-07
  • Tourette Syndrome @ (56) 08-09-07
  • Hydrocephalus @ (45) 08-09-07
  • Spina Bifida @ (34) 08-09-07
  • Huntington's @ (29) 08-09-07
  • Ehlers-Danlos Syndrome @ (29) 08-09-07
  • Hemophilia @ (29) 08-09-07
  • Retinoblastoma @ (28) 08-09-07
  • Marfan Syndrome @ (26) 08-09-07
  • Dystonia @ (25) 08-09-07
  • Thalassemia @ (22) 08-09-07
  • Narcolepsy @ (20) 08-09-07
  • Rett's Syndrome @ (20) 08-09-07
  • VACTERL Association (19) 08-09-07
  • Williams Syndrome @ (18) 08-09-07
  • Neurofibromatosis @ (17) 08-09-07
  • Botulism @ (17) 08-09-07
  • Osteogenesis Imperfecta @ (14) 08-09-07
  • Porphyrias @ (14) 08-09-07
  • Dercum Disease @ (14) 08-09-07
  • Friedreich Ataxia @ (13) 08-09-07
  • Turner Syndrome @ (13) 08-09-07
  • Fanconi Anemia @ (13) 08-09-07
  • Gaucher's @ (13) 08-09-07
  • Hidradenitis Suppurativa @ (13) 08-09-07
  • Guillain-Barre Syndrome @ (12) 08-09-07
  • Tuberous Sclerosis @ (12) 08-09-07
  • Rickets @ (11) 08-09-07
  • Progeria (11) 08-09-07
  • Wilson's Disease @ (11) 08-09-07
  • Apert Syndrome @ (10) 08-09-07
  • Cyclic Vomiting Syndrome @ (10) 08-09-07
  • Trichothiodystrophy @ (10) 08-09-07
  • Prader-Willi Syndrome @ (10) 08-09-07
  • Phenylketonuria (9) 08-09-07
  • Fabry's @ (9) 08-09-07
  • Familial Dysautonomia @ (9) 08-09-07
  • Wegener's Granulomatosis (9) 08-09-07
  • Ataxia @ (8) 08-09-07
  • Cystinosis (8) 08-09-07
  • Noonan Syndrome @ (8) 08-09-07
  • Alagille Syndrome @ (8) 08-09-07
  • Madelung's @ (8) 08-09-07
  • Behcet's Syndrome @ (8) 08-09-07
  • Zellweger Syndrome @ (7) 08-09-07
  • Klippel-Feil Syndrome @ (7) 08-09-07
  • Charcot-Marie-Tooth Disease @ (7) 08-09-07
  • Crigler-Najjar Syndrome @ (7) 08-09-07
  • Moyamoya (7) 08-09-07
    		•  
  • Agnosia (7) 08-09-07
  • Aicardi Syndrome (7) 08-09-07
  • Shwachman Syndrome @ (7) 08-09-07
  • Sanfilippo Syndrome @ (7) 08-09-07
  • Incontinentia Pigmenti @ (7) 08-09-07
  • Opitz Syndrome @ (6) 08-09-07
  • Hereditary Angioedema @ (6) 08-09-07
  • Adrenoleukodystrophy @ (6) 08-09-07
  • Xeroderma Pigmentosum @ (6) 08-09-07
  • Galactosemia @ (6) 08-09-07
  • Multiple Hereditary Exostoses @ (6) 08-09-07
  • Joubert Syndrome @ (6) 08-09-07
  • Blastomycosis @ (5) 08-09-07
  • Lissencephaly @ (5) 08-09-07
  • Mobius Syndrome @ (5) 08-09-07
  • Nail Patella Syndrome @ (5) 08-09-07
  • Pemphigus (5) 08-09-07
  • Pallister Killian Mosaic Syndrome @ (5) 08-09-07
  • Velo-Cardio-Facial Syndrome @ (5) 08-09-07
  • Pseudoxanthoma Elasticum @ (5) 08-09-07
  • Neuroleptic Malignant Syndrome @ (5) 08-09-07
  • Proteus Syndrome @ (5) 08-09-07
  • Propionic Acidemia @ (5) 08-09-07
  • Rubinstein-Taybi Syndrome (4) 08-09-07
  • Degos (4) 08-09-07
  • Robinow Syndrome @ (4) 08-09-07
  • Tay-Sachs @ (4) 08-09-07
  • Ablepharon-Macrostomia Syndrome @ (4) 08-09-07
  • DiGeorge Syndrome @ (4) 08-09-07
  • Myotonic Dystrophy @ (4) 08-09-07
  • Sturge-Weber Syndrome @ (4) 08-09-07
  • Floating-Harbor Syndrome @ (4) 08-09-07
  • Stiff-Person Syndrome @ (4) 08-09-07
  • Stickler's Syndrome @ (4) 08-09-07
  • Erythromelalgia (4) 08-09-07
  • Treacher Collins Syndrome @ (4) 08-09-07
  • WAGR Syndrome @ (4) 08-09-07
  • Barth Syndrome (4) 08-09-07
  • Porencephaly @ (4) 08-09-07
  • Pick Disease of the Brain @ (4) 08-09-07
  • Bardet-Biedl Syndrome @ (4) 08-09-07
  • Cornelia De Lange Syndrome @ (4) 08-09-07
  • Niemann-Pick @ (4) 08-09-07
  • Coffin Lowry Syndrome @ (4) 08-09-07
  • Aarskog Syndrome @ (4) 08-09-07
  • Leigh's @ (4) 08-09-07
  • Cri du Chat Syndrome @ (4) 08-09-07
  • Pierre Robin Syndrome (4) 08-09-07
  • Zollinger-Ellison Syndrome @ (4) 08-09-07
  • Aase Syndrome @ (3) 08-09-07
  • Cockayne Syndrome @ (3) 08-09-07
    		•  
  • Thrombocytopenia Absent Radius Syndrome @ (3) 08-09-07
  • Corticobasal Degeneration @ (3) 08-09-07
  • Dandy Walker Syndrome @ (3) 08-09-07
  • Dubowitz Syndrome @ (3) 08-09-07
  • Craniofrontonasal Dysplasia @ (3) 08-09-07
  • Adie Syndrome @ (3) 08-09-07
  • Triploidy (3) 08-09-07
  • Hallervorden-Spatz Syndrome @ (3) 08-09-07
  • Fibrodysplasia Ossificans Progressiva @ (3) 08-09-07
  • Kluver-Bucy Syndrome @ (3) 08-09-07
  • Kernicterus @ (3) 08-09-07
  • Alternating Hemiplegia @ (3) 08-09-07
  • Laurence-Moon Syndrome @ (3) 08-09-07
  • Pallister-Hall Syndrome @ (3) 08-09-07
  • Cleidocranial Dysplasia (3) 08-09-07
  • Olivopontocerebellar Atrophy @ (3) 08-09-07
  • Meige Syndrome @ (3) 08-09-07
  • Alström Syndrome (3) 08-09-07
  • Gerstmann Syndrome @ (3) 08-09-07
  • Idiopathic Pulmonary Hemosiderosis @ (3) 08-09-07
  • Smith-Magenis Syndrome @ (3) 08-09-07
  • Glutaricaciduria @ (3) 08-09-07
  • Hemihypertrophy @ (3) 08-09-07
  • Smith Lemli Opitz Syndrome @ (3) 08-09-07
  • Refsum's @ (3) 08-09-07
  • Horner Syndrome @ (3) 08-09-07
  • Russell Silver Syndrome @ (3) 08-09-07
  • Cerebrocostomandibular Syndrome (2) 08-09-07
  • Lowe Syndrome @ (2) 08-09-07
  • Costello Syndrome @ (2) 08-09-07
  • Subacute Sclerosing Panencephalitis @ (2) 08-09-07
  • Prune Belly Syndrome @ (2) 08-09-07
  • Tangier @ (2) 08-09-07
  • Tyrosinemia (2) 08-09-07
  • Weaver Syndrome @ (2) 08-09-07
  • Waardenburg Syndrome @ (2) 08-09-07
  • Usher Syndrome @ (2) 08-09-07
  • POEMS Syndrome @ (2) 08-09-07
  • Gustatory Sweating @ (2) 08-09-07
  • Isaacs Syndrome @ (2) 08-09-07
  • Homocystinuria @ (2) 08-09-07
  • Kearns Sayre Syndrome @ (2) 08-09-07
  • Mannosidosis @ (2) 08-09-07
  • Abetalipoproteinemia @ (1) 08-09-07
  • Pemphigoid (1) 08-09-07
  • Melorheostosis (1) 08-09-07
  • Schizencephaly @ (1) 08-09-07
  • Lesch-Nyhan Syndrome @ (1) 08-09-07
  • Ollier Disease (1) 08-09-07
  • Jacobsen Syndrome 08-09-07

    •   10 pages found in Rare Disorders:

    Cherubs - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
    www.cherubs-cdh.org

    Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
    www.cafamily.org.uk

    European Organisation for Rare Diseases - Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
    www.eurordis.org

    Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
    members.cox.net/fdsupport/index.html

    Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization.
    www.hgfound.org/

    Information Centre for Rare Diseases and Orphan Drugs - Offers an Internet portal. Includes news, forums, rare disease and orphan drug information and registration forms
    www.raredis.org/modules/news/

    Kindler Syndrome - An article and case study of this rare disease. Includes links.
    digilander.libero.it/camdic/KINDLER.html

    Nomid /Cinca - Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups.
    pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.htm

    Office of Rare Diseases - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
    rarediseases.info.nih.gov/

    Tetrahydrobiopterin - Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
    www.bh4.org



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