Spinal Muscular Atrophy

Elizabeth's Page - Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
www.our-sma-angels.com/elizabeth/

Families of SMA (Spinal Muscular Atrophy) - International support group and resource center for this disease, includes current research.
www.fsma.org

FightSMA - Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
www.fightsma.org/

GeneClinics SMA Information Page - Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
www.geneclinics.org/profiles/sma/index.html

Ilsa's SMA Resources - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
www.smaangel.com

Jennifer Trust for Spinal Muscular Atrophy - Providing support, information and research news for UK families.
www.jtsma.org.uk

Our SMA Angels - Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
www.our-sma-angels.com

The Sean W. Venezia Foundation - Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
www.smafund.org

SMA Angels Support Site - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
www.smaangels.com

SMA2 Ian Paul - I am two years old and I have SMA2.
www.geocities.com/ianpaul2/

SMA Support Inc. - A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
www.smasupport.com

Spinal Muscular Atrophy Foundation - Information on SMA, and the latest updates in research, treatment and funding.
www.smafoundation.org

Theo's Story with SMA - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
www.mysunrise.ch/users/af.mast/

Tori's Buddies - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
www.fightsma.org/index.php?fam_tori

Twins with SMA - Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.
www.twinswithsma.co.uk

Washington University of St. Louis: Neuromuscular - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
www.neuro.wustl.edu/neuromuscular/synmot.html