Sanfilippo Syndrome

Bennett Children's Foundation - Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
www.claritystudio.com/helpachild/

Ben's Dream - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
www.bensdream.org

Children's Medical Research Foundation - Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
www.curekirby.org/

Frankiepants - Personal site about a child with this disorder. Provides details about the condition.
www.frankiepants.com

MPS III - Information, including the causes, different forms, the inheritance and how the disorder progresses.
www.mpssociety.org/content/4039/MPS_III/

The Sanfilippo Children's Research Foundation - Canadian based charitable group founded by the parents of Elisa Linton.
www.alifeforelisa.org/

Special Child: Disorder Zone Archives - Sanfilippo Syndrome - Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
www.specialchild.com/archives/dz-034.html