Epidermolysis Bullosa

Cristina's Castle in the Clouds - Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
cristinascastle.homestead.com/

DebRA Australia, Queensland Branch - Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
www.debraqld.org

DebRA Canada - Includes articles, news, and information about this genetic disorder.
www.debracanada.org/

DebRA of America - Offers information, news, newsletters, support, and resources.
www.debra.org/

DebRA UK - Features organization background, information about the disorder, fundraising and research details, and news.
www.debra.org.uk/

EB Info World - Information, mailing list, pictures, and help for new parents.
www.ebinfoworld.com

EB Medical Research Foundation - A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
www.ebkids.org/

Epidermolysis Bullosa - Through the Eyes of a Patient - A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition.
www.ebpatient.com

International EB Forum - Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
www.internationalebforum.org/

Jonathan's EBzone - The author shares her son Jonathan's crusade and life with Epidermolysis Bullosa (EB), a rare genetic disorder.
www.ebzone.bravehost.com

Yahoo! Groups: EBworld - Mailing list support group for parents, patients, and those interested in learning about disease.
health.groups.yahoo.com/group/EBworld/